BENIGN PAROXYSMAL TORTICOLLIS
| STORIES |
Here are some stories written by parents for parents just like you. Here you will read some very heart felt stories written about children who suffer from BPT and their families and what they suffer from both physically and emotionally due to this rare disorder. Very private moments in families lives are being shared with you in a hope that they may bring you some comfort, understanding and even knowledge about this disorder. We all feel like we are alone when our beautiful children suffer through these episodes and just knowing that there are other people out their and finally being able to read their stories at a time like this can be the biggest weight lifted from your shoulders. Make sure you have a box of tissues handy as it can be quite an emotional ride reading the below stories, especially if you and your child are suffering the same. |
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| Phin's Story |
Our son Phin (the beautiful little man who prompted me to start to this website) was born naturally with no complications but suffered severe jaundice a few days later, ending up under lights for 4 days. Other than that he seemed completely healthy and normal, although he would only breast feed on one side, refusing to lay and feed on the other side.
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Jasmine's Story |
I knew my baby was a girl from the very first pregnancy test. I was thrilled, a little baby girl of our very own. When people would ask the usual, “What are you hoping for?” I’d reply the standard, “We’d love a girl…but we’d love a little boy too…as long as our baby is healthy and strong, that’s all that really matters”.
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