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The creation of this website >>

I have started this website about BPTI for all the parents out there like myself who have children with this condition and would like one central location for information and support.

On this site I hope to share information, stories and photos from people all around the world who have had or are currently caring for a child with this disorder. Please feel free to contact me about anything seen on this website.

I have 2 sons with this disorder and want to do all I can to help others in our position as I know how hard it is to find any support as this disorder is so rare.

What is Benign Paroxysmal Torticollis of infancy (BPTI)?

BPTI is an under recognized, self-limiting, benign disorder characterized by recurrent episodes of head tilt secondary to cervical dystonia (Snyder 1969). Attacks are often accompanied by vomiting, ataxia and pallor. Episodes occur without warning and with no specific triggering factors, although often with remarkable regularity. Episodes settle spontaneously, usually within a few hours, but may last upto 7 days only remitting in sleep. Episodes usually occur within the first 12 months of life and usually resolve by 5 years (but can be longer), occurring between 2 weeks and every 2 months. Infants may be hypotonic during an attack or have tortipelvis or an abnormal trunk posture.

There very frequently is a family history of migraine. There is of yet no treatment that helps. The disorder is almost certainly under-recognized by pediatric practioners, who often order extensive and unrewarding testing. ^{Journal of Child Neurology/Vol.24, No.2 Feb 2009}

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bpt@live.com.au

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